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     <dc:title xml:lang="fr">Évaluation de la satisfaction des parents concernant le parcours de soins des nourrissons atteints de plagiocéphalie positionnelle en Bretagn. Partie 1, satisfaction et sources d’informations</dc:title>
     <dcterms:alternative xml:lang="en">Parents’ satisfaction assessment regarding care management of infants with positional plagiocephaly in Bretagne</dcterms:alternative>
     <dc:subject xml:lang="fr">Plagiocéphalie positionnelle</dc:subject><dc:subject xml:lang="fr">Satisfaction des patients</dc:subject><dc:subject xml:lang="fr">Prise en charge d'un patient</dc:subject>
     <dc:subject xml:lang="en">Plagiocephaly Nonsynostotic</dc:subject><dc:subject xml:lang="en">Satisfaction Patient</dc:subject><dc:subject xml:lang="en">Case Management</dc:subject>
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						<tef:elementdEntree autoriteSource="Sudoc" autoriteExterne="029680026">Soins médicaux‎--Évaluation</tef:elementdEntree>
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						<tef:elementdEntree autoriteSource="Sudoc" autoriteExterne="187556490">Plagiocéphalie positionnelle</tef:elementdEntree>
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						<tef:elementdEntree autoriteSource="Sudoc" autoriteExterne="032121067">Patients‎--Satisfaction</tef:elementdEntree>
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     <dcterms:abstract xml:lang="fr">Contexte : La plagiocéphalie positionnelle (PP) est fréquente chez le nourrisson. Elle est souvent minimisée par les soignants mais préoccupe de nombreux parents. Avant les récentes recommandations de la Haute Autorité de Santé, l’absence de ligne directrice pouvait favoriser une errance dans le parcours de soins. Objectifs : L’objectif était d’évaluer la satisfaction des parents concernant la prise en charge globale de leur nourrisson atteint de PP et d’observer si cette déformation remettait en cause les recommandations autour du couchage. Méthodes : Étude quantitative descriptive et observationnelle du 13 Mai au 30 Novembre 2019, en Ille-et-Vilaine, Morbihan et Côtes-d’Armor. Les questionnaires, étaient adressés aux parents de nourrissons de 2 à 18 mois présentant une PP, au sein des cabinets de médecine générale, pédiatrie et centres de Protection maternelle et infantile. Résultats : Cent quatre questionnaires ont été analysés. La majorité des parents (69,1 %) étaient satisfaits de la prise en charge. L’accompagnement inadapté par les soignants représentait le principal motif d’insatisfaction (86,7 %). Le manque d’information initiale, le sentiment d'isolement des parents et le retard de prise en charge ont participé aux difficultés rencontrées lors du parcours de soins. En présence d’une PP, 9,8 % des parents ont fait dormir leur nourrisson sur le ventre et 33,7 % sur le côté ; 33,7 % utilisaient du matériel de puériculture non recommandé. Conclusion : L’accompagnement coordonné des parents est essentiel, tout comme le partage d’une information commune sur la PP et la mort inattendue du nourrisson.</dcterms:abstract>
     <dcterms:abstract xml:lang="en">Context: Positional plagiocephaly is common across infants. It’s often minimised by the nursing staff, however worrying for many parents. No guidelines were given about how to handle this deformity, until recently when the French published recommendations. This previous lack of guidelines could lead to mistakes within the positional plagiocephaly care management process. Objectives: The first aim was to assess parents satisfaction regarding their infant’s global care management. Secondly, we observed whether this cranial asymmetry could reduce parental adherence to safe sleeping guidelines. Methods: A quantitative, descriptive and observational study was conducted from May 13th to November 30th 2019, in Ille-et-Vilaine, Morbihan and Côtes-d’Armor. Surveys were made available at general practitioners, paediatricians, and Maternal and child protection offices. They were addressed to parents having infants between 2 and 18 months and showing signs of positional plagiocephaly. Results: A hundred and four surveys were analysed. A majority of parents (69.1 %) were satisfied with their infants’caring process. The unsuitable care follow-up was the main reason for dissatisfaction (86.7 %). Dissatisfaction also came from other challenges encountered during the caring process, such as the initial lack of information, the parents’ feeling of isolation or the delay in being taken care of. Amongst responses about infant sleeping position, 9.8 % used the prone position and 33.7% the side position ; 33.7% was also using non recommended childcare tools. Conclusion: Having a coordinated healthcare staff is identically critical as sharing mutual information about PP and sudden infant death syndrome.</dcterms:abstract>
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       <tef:nom>Baulande</tef:nom>
       <tef:prenom>Laura</tef:prenom>
       
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